Supporting unpaid carers
How to define a carer, carers’ rights at work, how to talk about caring and how to set up practical and peer support.
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What's on this page
Introduction
Carers are employees who have significant responsibilities looking after someone who needs help due to illness, disability, or age. These responsibilities can greatly affect their work lives.
Some employees may already be carers when they join your our organisation. Others might become a carer suddenly if a loved one falls ill. Caring can be hard to manage alongside a job, especially when caregiving demands are unpredictable or increase over time. Nearly a third of carers provide care that is equivalent to a second full-time job.
You are very likely to have carers in your our organization. In the UK, nearly one in seven workers is a carer. Within the NHS, it’s one in three. Unfortunately, one in five carers leaves work because of their caregiving duties. This leads to a loss of talent, expertise, and experience, and replacing staff can be costly and time-consuming. Supporting carers helps retain skilled employees and promotes their wellbeing. It also makes good business sense and is a good employment practice.
Carers have legal rights that vary across the UK. The law provides basic rights, but many employers offer more support. As a Compassionate Employer member, we will recommend ways to go beyond legal requirements to support carers. Practical adjustments like flexible working hours can help a lot. Providing peer support and mental health resources is also beneficial for working carers.
What is a carer?
A carer is anyone, including children and adults who looks after a family member, partner or friend who needs help because of their illness, frailty, disability, a mental health problem or an addiction and cannot cope without their support. The care they give is unpaid.
Carers rights at work
Employees who are carers in England, Wales, Scotland and Northern Ireland have certain rights at work.
This includes:
- The right to one weeks unpaid carers leave under the Carers Leave Act.
- The right to request flexible working from day one of their employment. They can make this request twice within a 12 month period.
- All employees have the right to take a ‘reasonable’ amount of time off work to deal with an emergency or unexpected event that involves a dependant.
- Employees are protected from direct discrimination or harassment under the under the Equality Act 2010 in England, Scotland and Wales and under the Human Rights Act and Section 75 of the Northern Ireland Act.
- If an employee has worked for the same employer for 12 months and is responsible for a child under the age of 18 they are entitled to 18 weeks of unpaid leave per child. This must be taken before the child’s 18th birthday.
Talking about caring
Carers don’t have to tell the organisation about their caring role, but a sign of a compassionate employer is that they feel confident to do so. This can involve conversations that seem difficult or uncomfortable at first, but they don’t need to be.
You can use a Carer’s Passport as a guide.
Some topics for managers or HR teams to cover may include:
- Adjustments that would help the employee balance work and their caring responsibilities, for example, flexible working.
- Going over any relevant policies together such as a carers policy, compassionate leave or flexible working policy.
- Discussing carers leave, particularly which type of leave will be paid.
- What, if anything, they would like to be shared with their team or relevant colleagues. (Always ensure you have permission from the employee before sharing details of their caring role or the person they care for).
- Creating a plan for if the employee needs to take leave suddenly, including delegating their workload and how key contacts will be informed.
- Ensure the employee has any key signposting such as the number for your Employee Assistance Programme or Carers UK. Visit our Carers Signposting section for more details.
Practical support
There are a range of ways in which an employer can practically support an employee who is balancing work and caring. This includes making reasonable adjustments, offering flexible working and signposting to support such as financial support and a carers assessment.
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The law gives employees the right to ask for flexible working from day one of their employment. The legal right is to make two requests per year but as a carer’s responsibilities can change, sometimes unexpectedly, your organisation may want to allow more frequent requests.
The member of staff and their manager may want to:
- Try out a plan and see how well it works
- Review it and agree any changes needed
- Have this conversation on an ongoing basis
A carer may need occasional leave for emergencies, for example if care arrangements break down unexpectedly which means they may not be able to give notice.
Your organisation can treat this as part of their annual leave or it may have a more flexible approach, such as a policy of offering paid emergency leave for a given number of days per year.
There may be occasions when a carer needs to spend several days at a time away from work. Some employers offer unpaid leave to allow for this. If this might affect the person’s eventual pension, you could allow for them to carry on making pension contributions for the time they are unpaid.
If the person being cared for gets worse, or is about to die, they may need to spend time in hospital or in a hospice. This may change the carer’s practical role if they have been looking after someone at home, but they will still need time to play their part.
For example, they may need to join in meetings with the professional staff looking after a dying person, and they may want to spend as much time as they can with that person.
When someone has only a short time to live, every day can be precious. As a compassionate employer, you may want to consider a policy allowing paid leave for carers so that they can be with their loved ones in their last months.
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Depending on how big your organisation is, how it is structured and what the carer’s job is, there are all sorts of variations on flexible working that you may be able to offer:
- flexi-time – employees may be required to work within set times but outside of these 'core hours' have some flexibility in how they work their hours
- home working or teleworking – teleworking is where employees spend part or all of their working week away from the workplace and homeworking is just one of the types of teleworking
- job sharing – usually two employees share the work normally done by one person
- part-time working – employees might work shorter days or fewer days in a week
- term-time working – employees don’t work during school holidays and either take paid or unpaid leave or their salary is calculated pro-rata over the whole year
- shift-swapping or self-rostering – employees agree shifts among themselves and negotiate with colleagues when they need time off, with the process being overseen by managers
- staggered hours – employees have various starting and finishing times meaning that goods and services are available outside traditional working hours
- compressed hours – employees work their total hours over fewer working days, for example a 10 day fortnight is compressed into a nine day fortnight
- annualised hours – employees’ hours are calculated over a whole year and then split into ‘fixed shifts’ and ‘reserve shifts’ which can be agreed on a more flexible basis.
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If someone is spending 35 hours or more a week on caring they may be eligible to claim carers’ allowance.
There is a cap on how much they can earn and still qualify. If an employee is having to reduce their hours, HR could signpost them to explore this option.
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There are many practical resources and organisations dedicated to supporting carers in the UK. The Carers Signposting section can help you understand what is available.
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A person caring for someone who is disabled, ill or elderly is entitled to a carer’s assessment by their local council or trust.
If the council decides that the carer has eligible needs, the council have a legal obligation to meet these needs if the carer wants them to. Some councils and trusts in England, Wales and Northern Ireland charge for carers’ support.
If they do, then they carry out a financial assessment to decide what, if any, contribution they charge. Carers in Scotland are not charged for support provided by the council.
Guidance on the criteria is available from the Social Care Institute for Excellence and can help an individual decide whether or not to apply.
Services can be provided directly to the carer, or to the person they are looking after, or a combination of both.
Peer support
Peer support can be important for working carers. It allows them to receive support from others in similar situations as well as practical advice and suggestions.
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You may want to consider creating a staff network for carers depending on the demand and needs of your employees. This is usually a staff-led network with HR input.
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There are external support groups and networks around the UK for carers. There may be specific groups for specific types of carers, for example, those caring for someone with a mental health condition.
Local carers groups can support working carers by providing peer support and practical advice. There are carers events and training that employees may find helpful. This includes falls prevention, stroke awareness, dementia awareness and more.
To find local support option for your employees you can use the following search directories:
Emotional support
Having regular conversations with the carers in your organisation is important. This will help you to understand their support needs and any required changes to your processes or policies.
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Ask employees how often they would like to speak and check in to see how they are, especially if they are on carers leave. This will help ease them back into the workplace once they return. It is also helpful to check on their manager regularly, as supporting a carer in the team can often be stressful for them too.
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If you have an EAP, employees can call the helpline to receive emotional support. Ensure carers have the number handy and signpost to the support information.
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There are resources and organisations dedicated to supporting carers in the UK. The Carers Signposting section can help you understand what emotional support is available, including helplines and instant chats options.
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It’s important to remember that an employee may care for someone whose health goes up and down as a result of their diagnosis. They may have had a while to come to terms with their loved one’s diagnosis but it can still be just as devastating when they die.
If someone has been suffering from an incurable illness, such as dementia or cancer, their family may begin the grieving process long before the person actually dies. They will need the same sort of consideration and support as they go through this pre-bereavement period as they will later on when the person has died. For guidance on how to support bereaved employees see the dedicated section here.