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We submit evidence and information to government consultations, and produce briefings and guidance on key issues relevant to palliative and end of life care. 

Please find an archive of our recent and relevant publications below. If you're looking for information on anything prior to 2019, please get in touch

List of briefings and submissions

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2024

Hospice UK response to the Northern Ireland Draft Programme for Government 2024, November 2024

Hospice UK response to Safe and Effective Staffing in Northern Ireland Consultation, November 2024

Response to Call for Views on National Care Service (Scotland) Bill - Stage 2 draft amendments, September 2024

Our response to the Assisted Dying for Terminally Ill Adults (Scotland) Bill - Finance and Public Administration Committee response, September 2024

Our response to the Assisted Dying for Terminally Ill Adults (Scotland) Bill - Health, Social Care and Sport Committee response, September 2024

Response to Scottish Parliament Social Justice and Social Security Committee Pre-Budget Scrutiny 2025-26: Third sector funding principles, August 2024

Response to consultation on a Right to Palliative Care (Scotland) Bill, June 2024

Response to Healthcare Improvement Scotland's consultation on draft Ageing and Frailty Standards, June 2024

Never Events Consultation response, May 2024

Response to CQC Consultation on Guidance on Visiting in Care Homes, Hospitals and Hospices, February 2024

Hospice UK Spring Budget Representation, January 2024

2023

Response to consultation on Healthcare Improvement Scotland fee increase, December 2023

Response to the Scottish Government Survey on the Transitions to Adulthood: Statement of Intent, November 2023

Response to Scottish Parliament's Health, Social Care and Sport Committee's inquiry into remote and rural healthcare, October 2023

Response to consultation on A Human Rights Bill for Scotland, October 2023

Response to consultation on Health and Care (Staffing) (Scotland) Act statutory guidance, September 2023

Briefing on Scottish Government's Programme for Government, September 2023

Response to Scottish Parliament's Health, Social Care and Sport Committee's pre-budget scrutiny, August 2023

Briefing for Scottish COVID-19 Inquiry, July 2023

Response to inquiry into winter planning in Scotland, July 2023

Response to Call for Evidence on National Outcomes (Scotland), June 2023

Briefing on challenges facing hospices in Northern Ireland, May 2023

Briefing on challenges facing hospices in Scotland, May 2023 

Briefing on challenges facing hospices in Wales, May 2023 

Briefing on challenges facing hospices in England, May 2023

Submission to Labour National Policy Forum, March 2023

Hospice UK Submission ahead of Spring Statement, February 2023

Cross Party Group report into experiences of end of life during the pandemic, January 2023 (English)

Cross Party Group report into experiences of end of life during the pandemic, January 2023 (Cymraeg)

Submission to the Hewitt Review into Oversight of Integrated Care Systems, January 2023

2022

Submission to the Health and Social Care Committee's Inquiry into Integrated Care Systems Autonomy and Accountability, August 2022

Submission to the call for evidence to inform the Government's 10 Year Mental Health and Wellbeing Plan for England, 2022

Response to the Welsh Government’s consultation on draft regulations to support the implementation of the Mental Capacity (Amendment) Act 2019 and the Liberty Protection Safeguards, 2022

Response to the UK Government consultation on Changes to the MCA Code of Practice and implementation of the LPS, 2022

Submission to the Health and Social Care Committee Expert Panel's assessment of the UK Government’s commitments made in the area of the health and social care workforce in England, 2022

Response to the COVID-19 Public Inquiry’s consultation on its draft terms of reference, 2022

Response to the House of Commons Health and Social Care Committee's inquiry into Workforce: recruitment, retention and training, 2022

Response to the call for evidence to inform the Government’s 10-Year Cancer Plan for England, 2022

Future Vision Cymru: Seamless and Sustainable, English version and Welsh version, 2022

2021

Response to the proposed Assisted Dying for Terminally Ill Adults (Scotland) Bill, 2021

Response to the UK Commission on Bereavement, 2021

Response to the Department of Health and Social Care's consultation on making vaccination a condition of deployment in the health and wider social care sector, 2021

Response to the Department of Health and Social Care’s consultation on extending free PPE to the health and care sector, 2021

Response to Health Education England's Strategic Framework Call for Evidence, 2021

Future of hospice care in Scotland and its summary report, 2021

Equality in Hospice and End of Life Care: Challenges and change, 2021

Dying Behind Bars: How can we better support people in prison at the end of life? 2021

Hospice Care in Scotland Activity Report, 2021

Hospice care in Wales: activity and need, English version and Welsh version, 2021

Summary of NHS England priorities and planning guidance 2021-22, 2021

Hospice UK response to CQC strategy consultation, 2021

Hospice UK response to CQC consultation on Flexible and Responsive Regulation, 2021

Hospice UK's response to Welsh Government's consultation on the White Paper on Rebalancing Care and Support, 2021

NICE consultation - Draft Quality Standard (End of life care), 2021

Hospice UK response to call for views: Disabled Children and Young People (Transitions) (Scotland) Bill, 2021

Integrating care: Next steps to building strong and effective integrated care systems across England, 2021

Hospice UK Manifesto Priorities for the Senedd Election 2021 – concise version in English and in Welsh

Hospice UK Manifesto Priorities for the Senedd Election 2021 – full version in English and in Welsh

Hospice UK Manifesto Priorities for Scottish Parliament Elections, 2021

2020

Hospice Funding in England (Nov 2020-March 2021) – Q&As, 2020

House of Lords Topical Questions Briefing, 2020

Scottish hospices: Clinical innovation in response to COVID-19 pandemic, 2020

Coronavirus Act Briefing Update, 2020

Hospice UK response to Scottish Parliament Social Security Committee, 2020

Hospice UK’s response to the Proposed Disabled Children and Young People (Transitions) (Scotland) Bill, 2020

Response to the Scottish Parliament's Health and Sport Committee inquiry into social care, Hospice UK, the Association of Palliative Care Social Workers, Carers Scotland, Children’s Hospices Across Scotland, Marie Curie, MND Scotland, Scottish Care and Sue Ryder, February 2020

2019

Response to the Scottish Government Consultation on the Draft Carers Strategic Policy Statement, Hospice UK, December 2019

Submission to the Scottish Parliament's Health and Sport Committee on what primary care should look like for the next generation, Hospice UK, August 2019

Meeting current and future need for hospice and end of life care: Five priorities for the next UK Government, Hospice UK, November 2019

Survey into impact of cost pressures on services to local people, Hospice UK, April 2019

Response to Scottish Government consultation on new public health body, 2019

Response to Scottish Government consultation on a falls and fracture prevention strategy, 2019

Cost pressures on UK hospices survey, 2019

2018

Care committed to me, Hospice UK, December 2018

Bereavement support in Scotland, Sue Ryder and Hospice UK, October 2018

Inquiry into inequalities in access to hospice and palliative care in English and Welsh, CPG Hospices and Palliative Care, July 2018

Position statement on physician-assisted suicide, Hospice UK, June 2018