The co-production team was made up of Danyal, Elliot and Timothy. They shared their experience of living with a life-limiting condition and were fully involved in all stages of producing this resource. Hospice UK would like to thank them for their contribution.
Based on their own experience, the co-production team provided practical advice about:
what to expect when you've been diagnosed
support with school, college and talking to friends
the impact on loved ones
hospital admissions
planning ahead
transitioning back to 'normal life' post-treatment.
The resource contains direct quotes from people with lived experience, and signposts to helpful organisations.